Shanan Trail

A Four-Frame Life

15 October 2008 · 7 Comments

Recently the moderator of one of the Yahoo groups I subscribe to sent a link to the downloadable versions of educational pamphlets available from available from the FAS Family Resource Institute. In this treasure of information, I found the most accurate description of a teen with FASD that I have ever read, at least it accurately describes Marissa.

My mind has been trying to wrap itself around the description of the teen with FASD living in a four-frame cartoon world. I could give you example after example of how this is true about Marissa, but that isn’t really what this post is about. I had toyed with the idea of giving you all one example, but I decided one example would just invite people to write, “All teenagers do that,” in my comment section. What I have been thinking about is how this should affect the way I parent Marissa.

When Marissa was in public school she struggled to behave all day in school. When she was young, I learned that if she had a behavior problem in the morning, I might as well pick her up immediately. She wasn’t going to last the whole day anyway. No matter what she did the rest of the day, she couldn’t change her outcome. She was going home with a bad person’s slip. It had to be signed. She was sure to get a lecture. She would become anxious and despondent. She was quite emotionally fragile by the time she got home. So, the teacher and I divided her school day into hours and activities. Recess, lunch, PE, music, art, each hour of school and the time between arriving at school and actually having class start were all separated. The teacher had a 10-petal daisy. Marissa got to color a petal for each activity she was able to successfully complete. Marissa was praised for every success. Perfection was never our goal. I lived with Marissa in her four-frame world.

Since Marissa has become a teen, I have found that living in her world is difficult. I have really made an effort to separate those behaviors that I would prefer Marissa not do and behaviors that reflect her mood and are just plain annoying from outright rebellion. All of us as teens and young adults choose to do things that separate us and make us distinct from our parents. I cannot cure a mood disorder with loss of freedoms. But, much of Marissa’s behavior in the last several months has been just plain old-fashioned rebellion with potentially life-long consequences. I have tried to lay down the law. When my parents did that I snapped to it. I immediately began working to re-earn their trust and my freedom. I saw into the future and knew that my parents would come to see me in a different way and that my life could be different than how it was right after I had majorly screwed up. But, Marissa is put back in her childhood dilemma. No matter what she does, she is powerless to change her outcome. She is a bad or stupid person. I am going to keep talking about things from “the past.” For Marissa, the past is anything that happened yesterday. She is tired of all the lecturing. She is anxious and despondent. She is quite emotionally fragile. And, her behavior is getting worse because, “No matter what I do, you will never trust me again.”

This may go down as being the worst parenting advise in history, but I have decided to make an effort to join Marissa in her four-frame world again. I am already considered too strict because I say no to activities that are overstimulating and require Marissa to make good choices for several hours in a row. Now people can think I am too lenient when Marissa earns back freedoms very quickly when she has done something for which most parents would lay down the law. Maybe it will be fun being the cool and understanding parent for a change. Oh, those consequences that keep her physically safe, like the alarm system that keeps her from wandering out of our home in the middle of the night and into trouble, will stay in place. I am talking about going to Youth Group, meeting friends for a movie or being allowed to use the phone and computer. Because, one thing is certain; I have to try something different or our family is going to crumble. Marissa’s behavior is almost intolerable and I only catch glimpses of the woman I knew just a mere six months ago. She is trying this morning. She has been pleasant; she is participating in school. If she has done this for several hours, she expects to see me trusting her again. I am just going to have to fake it until I make it.

Another brochure stated:

“When you attempt to hold them accountable for inappropriate actions, they will typically lie as an immediate means to escape from an unpleasant situation, rather than tell the truth and resolve the issue.”

This may well be one of the most annoying things about FASD. Last night I confronted Marissa with something I found and she lied. When I confronted her with inconsistencies in her story and the facts I had on hand, she said, “So beat me until I tell you the truth.” She smiled smugly and walked away having reinforced my growing suspicion that having her live at home after she is 18 and thinks of herself as too grown to have to follow the rules is not going to be a workable long-term solution. She was in control and she knew it.

More blog therapy. Thank you for listening. You are all much cheaper than a psychologist and it is so helpful that most of my readers share my worldview. Besides, I didn’t even have to wait for an appointment.

Categories: Fetal Alcohol Spectrum Disorder

7 responses so far ↓

  • Mrs. C // 15 October 2008 at 5:49 am | Reply

    Yeah, I’m a super-cheap therapist here LOL!

    You know, Marissa is going to be grown up soon. What else are you going to do? I suppose you could TRY to punish her for stuff she’s done till her 18th birthday. Then what?

    But I hear ya. You want to train her up as well. We struggle with G in this area. It’s just so hard. And people who aren’t “there” don’t get it, which makes it harder.

    I’m reading the pamphlet on the sidebar. Know what? HONESTLY, if I didn’t have my own struggles with autistic children, I’d say that was a rundown on a bratty kid who never got told “no.” And as a parent, I want to discipline my kids for the “brattiness” but not punish for the autism. And it’s so hard to separate.

    Oh… I don’t know what to say and hopefully what I’ve said I’ve said “right” and it doesn’t come off the wrong way. The point is I’m on your side, I’ve been there a *little bit* and I appreciate your honesty. I really do.

  • debd // 15 October 2008 at 6:01 am | Reply

    You have to do what works for your family and Marissa. Prayers for you as you wade through all the possibilities.

  • Linda // 15 October 2008 at 2:31 pm | Reply

    We are struggling with the exact same things as you are with our daughter. As I read your posting, tears ran down from my black and blue eye. You have written this so well. Please keep us updated on how this works for her.

  • Lori // 16 October 2008 at 2:10 pm | Reply

    I think a lot of what we have to do as parents is to suit the parenting to the child. You’ll find (as you probably expected) that what worked for Marissa might not work for Beverly or David. It isn’t logical at all, really. And it wears on me greatly, but there it is.

    I’m currently in the midst of attempting to deal with my 13-year-old OCD child, who is actively rebelling and refusing to do her work and my 9-year-old Aspie daughter who is also refusing to do her work but I don’t see it so much as a rebellion thing. It’s hard to find consequences that work for them both (that I can live with and remember). And it makes me very tired. There are a lot of nights that I just cry myself to sleep and wish I wouldn’t wake up to more of the same. But I will and I have to deal with it.

    Sorry, I guess I’m venting in your comments section…thanks!

  • Bobbie-Jo // 16 October 2008 at 6:20 pm | Reply

    I’m sorry that you don’t feel free to write specifics for fear that the response will be “That’s what all teens do.” Even though I’m still doing the toddler thing, I know what that statement means. Eli does do all of the typical misbehaviours that toddlers do … but there’s something else there. Something else that I think only some of us see. Everyone else thinks we’re bizzarely over-protective. Anyway, I just hope you have someone you can vent specifics to.

    I think it’s good thinking to re-plan your attack strategy. If she’s just not “getting” the long term consequences, what good are they doing? It will just alienate you more when your sphere of influence should be expanding as she joins more adult activities. Youth group is usually a safe middle ground between home and world.

    I’m sure you don’t want advice from me, I’m still idealistic about the teen FASD years, because I’m barely hanging on to the preschool years. :) But you do have an ear in me. I’ll send the bill in the mail.

  • Dana // 17 October 2008 at 1:28 am | Reply

    That is tough. And kids can bury themselves so quickly and see no way out. This really caught my attention, however:

    …one example would just invite people to write, “All teenagers do that…”

    I think that is the most difficult part of trying to discuss these kinds of issues with parents of normal children. Because most of the behaviors you see in children with mental or behavior disorders are the same kinds of things you see in any other kid. They are just to a different degree that you cannot understand unless you have been through it.

    And thus it is easy for those on the outside (especially if they already have a worldview that says you just have to do A to achieve B with a child and medication/therapy is always wrong) to condemn the parent rather than offer the much needed support.

    When my son is having a tough time, he looks like any other boy who is never disciplined…hyper, defiant, literally bouncing off the walls. Then at other times he is a perfect angel, leading people to say, “See, he can be good. You just have to expect it of him all the time.”

    But I do. That isn’t the issue. There are other things going on. Now that his compulsions have drifted from the perfect lining up of his toys and continual counting (the interruption of which was the stimulus for more than a few meltdowns in the care of others) and toward licking his hands and even other people, those around him are starting to recognize that there is something else going on. He isn’t “just” a “bad” kid.

    Sorry to go on about my boy. But I do tire of the criticism from people who don’t seem to know what they are talking about.

  • Barbara // 17 October 2008 at 10:56 pm | Reply

    “I cannot cure a mood disorder with loss of freedoms.”

    This was the sentence that shouted out to me. I’m doing lots of thinking about the endemic use of behavior modification.

    Thanks for the post, and I’m writing this after already glancing at the next post – where I hope to drop a couple of lines.

    Since I am a guilty perp for noting normal teen behavior, you get a credit on your account with me. [chuckle]

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